Ironic

Funny how ironic some things are... I can't sleep and it seems Jake can't stay awake...

  Wednesday was open house at the high school. We walked from class to class to meet all Jake's teachers. While we met Jennifer's teachers, Jake stayed in one class to finish a test ( yes... while wearing his cap & gown, It gives him motivation) Before we left he started feeling some pressure in his chest. So when we got home about 8:30  he went right to bed.  He woke up Thursday morning at 6, still complaining of chest pain. He stayed home from school. I called the doctor, they said it's probably nothing, but want to see him on Wednesday ( we won't even go into how annoyed I am over that).  I woke him up at 8 and sent him over to my moms.  He went back to bed at 9:55 and slept until 2:35,  ate lunch and went back to bed around 4:45.  I woke him up for dinner at 8....and was back in bed by 9.... so he was awake for a whopping total of 5 hours...  He usually takes a 3 to 4 hour nap everyday after school. On Wednesday he did not. He helped make brownies before the open house.  Let me just wrap my head around this...my son slept the entire day because he baked brownies and walked around the school?   hmm...,Can I just say something...please...  can I just say I hate this disease...  I do .. I hate it... In my mind I picture myself on the Oprah Winfrey show jumping up and down on her couch saying I hate Hypertrophic Cardiomyopathy.... I know,  not as dramatic as Tom Cruise...
I'm aggravated that I feel helpless. I can't do anything to make it better. We have to pray and wait.  Waiting SUCKS! 
I know he is 19, but when I look at him I still see my little boy...

 
So as I sit here, wide awake while my little boy sleeps, the song that run through my head is Ironic...this verse in particular ....Well life has a funny way of sneaking up on you...When you think everything's okay and everything's going right....And life has a funny way of helping you out when...You think everything's gone wrong and everything blows up in your face......
well it is ironic isn't it...